My son Jack was developing normally, a very happy chilled baby. He unfortunately started having tonsillitis and has had it 11 times already. What we thought was a normal infection was actually causing inflammation on a part of his brain. Every time he had tonsillitis his behaviour would drastically change he would become aggressive and have OCD, he also developed a tic which was impacting on him playing with his friends. He then developed anxiety and had trouble wanting to communicate and eat.
We took Jack to many different doctors and we could not find the answers to these changes in behaviour.
For a long time we thought Jack might be autistic, we were searching for answers and came across a clip on This Morning. It featured parents who were discussing their son, he had exactly the same symptoms as Jack after having a strep A infection.
This is where we discovered PANDAS, we contacted the doctor who was on the show and after just two weeks of treatment we felt like we had our son back. His tic is now completely gone and his behaviour has massively improved. Jack is now on antibiotics until he has his tonsils out in February to prevent him getting the Strep A infection which causes the problems.
We still have a long way to go but finally feel like we are heading in the right direction.
PANDAS is recognised by the World Health Organization (WHO) but sadly only 10% of nhs.uk doctors have heard of the condition meaning many children get mis-diagnosed with other conditions such as autism. If PANDAS is caught early it can be effectively treated and can be reversible.
Unfortunately there are many who aren't as lucky as we have been and are left totally unaware of the condition.
To raise awareness and fundraise for the PANS PANDAS UK charity I am going to compete a 24 hour swim in Loch Lubnaig with Vigour Events in Scotland on the 22nd of June. I have to complete a mile every hour, what remains of each hour is taken as rest.
Please donate if you can.
It's a huge challenge so your support would be massively appreciated.