Susan is fundraising

Great North Run 2019 for The ITP Support Association

£90.00 + £20.00 Gift Aid = £110.00
Donated to Susan’s £100.00 Goal

Susan’s story

I am taking part in the Great North Run again on September 8th 2019 and this year I am raising much needed funds to support The ITP Support Association. As most of you will know, my son, Freddie, suffered from Immune Thrombocytopenia (ITP) in 2018/19. This is a very rare and relatively unknown condition with symptoms that were very confusing and scary for an adult to come to terms with never mind a 7 year old child. In a nutshell, following a viral infection, his immune system did not stop after killing off the virus and continued to attack and destroy the healthy platelets in his blood, thinking they were a foreign body. As a result, his platelet count was very low and this resulted in spontaneous internal bleeds as he didn't have sufficient platelets to clot his blood. He was incredibly brave and endured weekly blood tests to monitor his condition and he had to put on hold being a 'normal' 7 year old boy as he couldn't risk any bumps or knocks that may have caused an internal haemorrhage. Thankfully, Freddie had an acute version of the condition and his platelet levels stabilised in February 2019 and, fingers crossed, have remained stable. Not a lot is known about ITP as due to lack of funding, research into the condition has not moved on since the 1980's, therefore I would like to donate anything I raise to the ITP Support Association, the only UK based ITP charity, who fund research into ITP as well as providing a wealth of information and support to people with ITP and their families. Thank you for taking the time to read this and for your support. xxx

All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.


The ITP Support Association

The ITP Support Association is the sole UK registered charity supporting and representing the interests of patients, and the families of patients, with Immune Thrombocytopenia (formerly known as Idiopathic Thrombocytopenic Purpura), and funding research into the causes and best management of ITP.

The ITP Support Association was formed in 1995 to provide information and a support network for adults, and parents of children, with ITP.

Immune Thrombocytopenia is a frightening rare bleeding disorder in which the body’s immune system destroys platelets in the blood. Unlike autoimmune diseases such as rheumatoid arthritis and MS it is not progressive as the risk of bleeding exists from the day the disease develops. It can arise in anyone at any age, and affects three to four thousand adults and children in the UK. Its symptoms vary from one sufferer to another but include nose bleeds, mouth blisters, heavy periods, large multi colour bruises, petechiae, fatigue and, on rare occasions, internal bleeding. Treatments, which all have their dangers and drawbacks, are not always effective in raising the platelet count, and only rarely cure the disease.

Registered Charity Number: 1064480.

Find out more about The ITP Support Association

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