Kay is fundraising

Great North Run 2019 for SOFT UK

£0.00 + £0.00 Gift Aid = £0.00
Donated to Kay’s £400.00 Goal

Kay’s story

Running the Great North Run for the charity SOFT UK. SOFT UK help and support families with children with Trisomy 13 & 18. I unfortunately lost my baby who had Trisomy 13 last July so I would like to raise money to help the charity and also in memory of my baby. Thank-you for taking the time to donate and read my storey.



SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome) or Trisomy 18 (Edwards' syndrome) and related conditions. We provide support through all stages of the Trisomy journey and beyond.

  • SOFT UK provides information and support during a pregnancy, to families awaiting test results, ending a pregnancy, or continuing with a trisomy pregnancy.
  • SOFT UK supports families caring for babies, children and adults affected by Trisomy. We provide information, spaces for families to share experiences and regular family meet-ups.
  • SOFT UK supports families if a bereavement occurs, for as long as they need it.
  • SOFT UK support is offered to all members of the family, including siblings, grandparents and friends.

SOFT UK also offers information and support to professionals working with families affected by Trisomy:

• Information briefings for professionals

• Medical advisers across a range of specialisms with experience of Trisomy

• Bespoke training opportunities for Health Professionals

• Consultation services

Registered Charity Number: 1002918.

Find out more about SOFT UK

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