Kay is fundraising

Great North Run 2019 for SOFT UK

£95.00 + £21.25 Gift Aid = £116.25
Donated to Kay’s £400.00 Goal

Kay’s story

I decided to do the Great North Run to raise as much money as possible for the charity SOFT UK. SOFT UK help and support families who have suffered loss of a child and families with children who have Trisomy 13 & 18. At 16 weeks pregnant, I lost my baby to Trisomy 13 last year, I had the amazing support of family and friends around me at the time but I found SOFT UK and I follow their stories and blogs etc and I just wanted to help out by raising money for them, as they really are amazing. Thanks for taking the time to read this and Thank-you for any donation, it really is appreciated so much.

All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.



SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome) or Trisomy 18 (Edwards' syndrome) and related conditions. We provide support through all stages of the Trisomy journey and beyond.

  • SOFT UK provides information and support during a pregnancy, to families awaiting test results, ending a pregnancy, or continuing with a trisomy pregnancy.
  • SOFT UK supports families caring for babies, children and adults affected by Trisomy. We provide information, spaces for families to share experiences and regular family meet-ups.
  • SOFT UK supports families if a bereavement occurs, for as long as they need it.
  • SOFT UK support is offered to all members of the family, including siblings, grandparents and friends.

SOFT UK also offers information and support to professionals working with families affected by Trisomy:

• Information briefings for professionals

• Medical advisers across a range of specialisms with experience of Trisomy

• Bespoke training opportunities for Health Professionals

• Consultation services

Registered Charity Number: 1002918.

Find out more about SOFT UK

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