Team Natalie and Michael is fundraising

Paddock Wood Half Marathon for The ITP Support Association

£715.00 + £61.25 Gift Aid = £776.25
Donated to Team Natalie and Michael’s £1000.00 Goal
27
Sponsors

Team Natalie and Michael’s story

We will be running our first half marathon in Paddock Wood on 5th April for the ITP Association and our dad Paul, who ran the same half marathon in 2013. It is a small charity which supports people with Immune Thrombocytopenia (ITP), a rare blood condition which affects 3000-3500 people in the UK.


The auto-immune condition causes the body to destroy platelets which are found in blood. The cause is unknown and it can cause spontaneous bruising and bleeding.


In May 2016, our dad was diagnosed with a brain haemorrhage and spent a month in Maidstone and Kings College London hospital receiving treatment.


Dad's platelet levels were so low he needed platelet transfusions and was at risk of further bleeding. Luckily tests found that the bleed in the brain had been caused by ITP and he was started on rescue medication.


Luckily dad recovered from his haemorrhage, but he has to manage ongoing symptoms from ITP such as fatigue and due to the risks of further bleeding he had to medically retire.


Luckily research has developed the drug 'Eltrombopag' which dad responds well to. He had been taking this daily for the last 3 years, and he will have to take this for the rest of his life. This medication is very expensive, each tablet costs about £55, but it keeps him and many other people alive.


As a very active man dad struggled with the dramatic change to his capabilities. He found the support from the ITP Association invaluable. They have helped them to understand and come to terms with his condition, and taught him how to manage his symptoms and the side effects of his medication.


We would like to raise awareness of the condition and to thank the ITP Association for the support they have provided dad. We would be grateful if you could spare some pennies to allow this small charity to continue to support other families and develop further treatments for the condition. 


All funds raised will be passed to the charity irrespective of whether my target is reached, not reached or exceeded.


Updates


The ITP Support Association

The ITP Support Association is the sole UK registered charity supporting and representing the interests of patients, and the families of patients, with Immune Thrombocytopenia (formerly known as Idiopathic Thrombocytopenic Purpura), and funding research into the causes and best management of ITP.

The ITP Support Association was formed in 1995 to provide information and a support network for adults, and parents of children, with ITP.


Immune Thrombocytopenia is a frightening rare bleeding disorder in which the body’s immune system destroys platelets in the blood. Unlike autoimmune diseases such as rheumatoid arthritis and MS it is not progressive as the risk of bleeding exists from the day the disease develops. It can arise in anyone at any age, and affects three to four thousand adults and children in the UK. Its symptoms vary from one sufferer to another but include nose bleeds, mouth blisters, heavy periods, large multi colour bruises, petechiae, fatigue and, on rare occasions, internal bleeding. Treatments, which all have their dangers and drawbacks, are not always effective in raising the platelet count, and only rarely cure the disease.

Registered Charity Number: 1064480.

Find out more about The ITP Support Association

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